9/27/2013- The Inaugural Golf Tournament was a HUGE success. Thank you to all our participants, and sponsors. Without all of you we would not have been able to make another $5,000 donation to Jon's transplant fund. Since earlier this summer Jon has started dialysis. He's doing Peritoneal Dialysis which is done in our home, during the night while he sleeps. This type of dialysis allows Jon to continue to work full time. We are taking each change and step in this journey together knowing that there will be a better tomorrow after he received his new kidney.
There's no update on a donor. At this time we are about half-way through the wait period for a deceased donor, and half way through the wait period to be possible matched through the shared donor program where I'd donate my kidney to someone of A-blood type and someone they know would give Jon their kidney.
6/24/2013 - Announcement: An Inaugural Golf Tournament is planned for Sunday, September 22nd at the Countryside Country Club. See our events page for more details.
6/14/2013 - The search for a living donor continues, and at the same time we are continueing to manage Jon's health. Summer is harder on him as the heat dehydrates him much faster, which leads to him being tired, but we are keeping our spirits up and allowing him to take naps on the weekends!
4/30/2013 - Race Results and Photos are now available.
Race Results can be found at www.coolrunning.com (search for results in FL)
Race Photos can be found at www.boonesproevents.smugmug.com
For every photo that is purchased as a print Boone's Pro Events will donate $1 back to Help Hope Live for Jon.
For every photo that is purchased as a download they will donate $0.25 back to the fund.
Enjoy the photos and can't wait till the next event!
4/28/2013 - Well yesterday marked the first annual Help Hope Live 5K, and I am proud to say we had 135 participants! It was amazing to see all the support we received from the community. With participants, volunteers, sponsors and donors we were able to raise a Net amount of $6,400 towards Jon's Kidney Transplant fund!!!!! I thank everyone!
4/6/2013- There is 3 more weeks before the first annual Help Hope Live 5K don't delay register today and bring your friends. I promise it's going to be a great event. Thank you to all our sponsors who without your support this event would not be possible - Clearwater Window and Door, Wells Fargo Advisor- Chad Spencer, Precious People Learning Center, Cool Wizard, Brightway Insurance Agent - Mike Hatmaker, Quality Inn Tarpon Springs, DJ Boone's Professional Entertainment.
2/18/2013 - The road to a kidney translant is full of twists and turns. This weekend Jon's case took a new turn, related to a living donor. A friend of ours had made the selfless offer to undergo testing to see if she could be a donor to Jon. Unfortunately after numerous tests, the transplant board at Life Link Tampa determined she is not a compatible donor for Jon.
Jon remains on the UNOS list for a Kidney, but with O blood type the standard wait time is 2 1/2 - 3 years. A living donor is a better option for Jon's case.
If you or anyone you know has ever considered being a living donor and have O blood type (+/- doesn't matter) please feel free to message us. The process begins with a phone consult and blood test.